This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.
This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.
This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.
Tuesday, February 2, 2010
100 balloons, 100 CHD warriors gone too soon
As you probably know, we are planning on having a balloon release to wrap up the day's events for "Art for the Heart." Originally, I had my blinders on and was just thinking of Maverick... Ask any parent who has lost a child what is most important to them and they'll tell you - it's that their child is not forgotten. Then I started thinking... The stories of so many others have touched my heart this year. So many others heard the earth-shattering words, "Your baby has a heart defect." So many others had their babies whisked away shortly after birth to a world of alarms, wires, and tubes. A world so different than the dreams we had for them. Dreams of snuggling them on our shoulders, smelling that wonderful baby smell and feeling their breath on our necks as they drifted off to sleep. So many others had to hand their children off with a last kiss and, "I love you," not knowing what the outcome of such a risky surgery would be. So many others prayed and prayed and prayed as they waited to hear the next update from the operating room. So many others watched, helplessly, as their precious child fought for each minute, each hour, each day - just wishing we could take their place. So many others held the tiny bodies of their little ones as they took their last breath here on this earth. So many others planned funerals and picked out tiny caskets and cemetery lots. So many others hurt, and miss, and cry. For all these other parents, in memory of all our fighters, we will have a balloon release. I have ordered one hundred red, heart-shaped balloons to release. If you have a CHD angel, and would like their name attached to one of our balloons, please post their name, birth date, and angel date to this post. If you are able, we would love to have your support for our fundraiser for the Children's Heart Foundation, however, there is no donation required. I will be adding a button to the side of our blog if you are interested in donating. It's quick and easy and no amount is too small. Together, we can have an impact on the cruel and awful reality of congenital heart defects.
I am a mother to Maddie, Carter, Chloe, and of course Maverick - who is now in heaven. I am wife to Greg. I am an RN and worked for Mediflight of Oklahoma transporting critically ill neonates throughout the state prior to Mav's birth. I am currently taking some time off to enjoy my kids before I start nurse practitioner school in the fall.