Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, June 22, 2009

Happy Father's Day - procedure coming up

We took this pic yesterday at Greg's sister's house. This is Greg's dad. We saw my dad in the early afternoon and his later in the afternoon. We went to the cemetery to Mav's grave after we left from seeing Greg's family. Father's Day wasn't easy for any of us - especially Greg. We're thankful to have both our dad's still here and they are wonderful, but there was still a void. There always will be.

My mom and Brown came into Shawnee yesterday evening. They're staying here for a few days due to the procedure. It's tomorrow @ Children's. I'm hoping all will go well. It should start around 10:30 - if the procedure before me is on time. You know how hospital time works. It could be 3:00pm before I go in - we'll see. I'll have someone update the blog when it's finished. If it works, I'll spend the night at Presby tower. If not, I'll be home in the evening. I'm a bit apprehensive about all this. I'm not really worried about anything going wrong, but I'm nervous about going back into Children's. I haven't been back since Mav died. One of my Mediflight friends now works in the cath lab at Children's, so it will be nice to have someone I know well there.

When my dad came over on Sunday he asked about the procedure and how it worked. I started to explain it and Greg said, "Why don't you pull up a video on the computer?" Brilliant idea. Dad said it helped him understand it a lot better. I'm posting a link below for anyone else who's curious how it works. I may not have the exact same device, but the concept is the same.

Well, enough for now. I need to go pack my bag. Say some extra prayers. Love you all, jc


Kay said...

I'll be thinking of you tomorrow. I know you're in good hands at Children's. Take care and don't worry. Thanks for the traveling tips.

Anonymous said...

I will definitely say some extra prayers for you tomorrow. It's my husband's birthday tomorrow, so only good things can happen, right!?!? I'm sorry Father's Day, and everyday is so difficult. The feelings you feel are completely normal...whatever normal is. Every person grieves differently, so don't hold yourself to a standard. When I read how you laid on his grave, my first thought was, "that's exactly what I would want to do!" My heart aches for you each and every day. Thank you for being so raw and open with your feelings. I'm sure it's not easy, but I pray it will help you and others who are grieving. We will keep praying for each of you! Good luck tomorrow! Everything will go great!

Anonymous said...

Thinking about you today and hoping the procedure will be successful!
Vanessa Blutrich