Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, September 14, 2009

Lots of Balloons

Thanks, everyone for your sweet emails with the pics of the balloons - I loved looking at them. I have to share them...

Here's a sweet message from Judith.

Clara and Dale from Mustang had the same luck we did - the one day out of the year there was no wind in Oklahoma. Wil and Carter from Houston had better luck. Their mom is my sweet friend, Kim. We like her hubby, Dave, too. Thanks Wil and Carter - we miss you guys.

Here's Vanessa and Owen. We met them in Dallas, but they've since moved to Arizona. Owen left the hospital the day Mav had his surgery. He's a TGA heart baby and is doing great. He's giving the balloon a kiss for Mav. What a cutie. Thanks, Vanessa. Glad the weather was working for someone!

Here's sweet baby Drew. Chloe knows him and his mom "Mawy" (Mary) by name from looking over my shoulder at her blog. He's another heart warrior from Michigan. I met them through the blog world and she's been such a great support throughout everything. She has a great blog at and shares lots of info about CHD.
This is the congregation of my step-mom, Teresa's church, Resurrection Lutheran in Yukon, OK. They combined the balloon release with grandparent's day and let off balloons for others who have lost their loved ones as well. What a great idea.
I was so touched to receive these pics and email from Mav's nurse, Marci, and her hubby, Charlie. Their balloon attempts didn't work, either, but they lit a candle for little Mav and put their little monkey by it. Such a sweet couple.

I was so happy to find out that Michelle had taken pics of Mav's cake before she sent it to me to be destroyed. She emailed them to me today. Isn't it perfect? Those who were with us at some point in Dallas will appreciate this cake. One of Mav's nurses, Morgan, drew this little airplane on his board and I wouldn't let anyone erase it. It is a big memory from Mav's life. We just might do this same cake every year on his birthday. It was wonderful - even though the icing had shifted due to my accident. Here's how to get in touch with Michelle if you need a great cake.
Today, I spent the day helping my friend, Dejah, decorate her studio. I really enjoy painting and decorating. It's relaxing and takes my mind off things - and I was in good company (Dovie, Dejah, and I can't leave out Mr. Quinn). Their place looks really nice.
Tomorrow it's back to the books. I have a test on Thursday and need to get some more study time in. So far things are going well in my classes. I'm still trying to get the paperwork ironed out for clinicals. Hopefully it will fall into place soon. I better get to bed. Thanks again, everyone. Love you all, jc


Kim said...

Amazing! I love that so many came out to support little Mav! I love you!

Anonymous said...

Dear Juli,

Thank you for driving from Shawnee with Maddy, Carter and Chloe to have lunch with Teresa and me. It meant so much to be able to see you and meet your beautiful children. Maddy is so graceful, gracious and mature. Carter is quite the warm and funny young man and Chloe - what a sweet little girl who smile will melt you.

I can't begin to tell you how much you have touched my heart over the past year. Thank you for saying I was a comfort to you. I want you to know I am always here if you need me. Well, I'm a phone call away anyway. :)

Good luck in your school. You'll do a great job. I know it.