Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, September 22, 2009


I've received some more balloon pics and I'll post them soon. I love them all. Thanks so much to all of you. Just a quick update... We were able to take our drawing of Mav's marker to the funeral home last week. They are working on it now. It's very unique - just like Mav. It has an airplane as the major aspect of it. I think it will be great. I think it's going to take a while, though. While we were there, Chloe kept wanting to go to the area where Mav was on our first visit there. She wanted to see if he was still in there. I explained to her that he wasn't there and reminded her that we buried his body in the ground. She's just so young, it's hard to explain. Greg picked up a few things that we had left there. One thing was the soft and silky blanket I held him in when I would hold him at the hospital. I'm glad to have it back.

Things around here are going well. I've been busy with school and kids. I'm loving school and it's going great - except for trying to get clinicals ironed out. The kiddos are doing well (just a few minor coughs). Maddie is dancing and having a great time. I had to sew elastic and ribbon on pointe shoes today - where is my mom when I need her???

Chloe's birthday is coming up and we're having it at Benedict Street. She's so excited - isn't that funny? It cracks me up that she would rather go there than McDonald's. I'm not complaining. Dejah took some amazing pics of her, a couple are on her blog at She is such a ham. The cute clothes are thanks to Dr. G. She brought us fall stuff and it is soooo cute. Chloe is having fun trying things on. It's nice to have friends with great hand-me-downs!

Carter is working on school - we had parent-teacher conferences last week. He is such a smart boy, he just has better things to do with his time. We're trying to help him think otherwise. He's been doing homework and playing with frogs in the backyard, I guess they're out because of all the rain.

I was just thinking today about how "normal" our lives seem. I watched the news today - I haven't seen it in several weeks. It broke my heart to hear the mom talk about her little girl at Children's who isn't expected to make it due to the flu. A year ago we were in the hospital with sweet Mav. Just remember to be thankful for your normal days and your healthy kids, and say a prayer for those who aren't having normal days right now.


Bill and Mary said...

Juli, please tell Dejah that I LOVE her pictures...especially the ones of my girl, Chloe! She has a true talent there, that is for sure!


Anonymous said...

Absolutely love, love the photos of Chloe! She is a natural. I have a feeling you are going to have your hands full in a few years! Even Ryan was bragging about her photos that he saw last weekend...said she looks like a model! Love Teresa

Anonymous said...

Hi Juli,

Loved all the pics of the balloons, cake, babies, what wonderful friends you have.

Chloe's pics are beautiful.

Have a wonderful week.



Kim said...

I have been meaning to tell you how much I love the pictures of Chloe! She looks beautiful and so big in them all! Did Miss Priss have a good birthday? I am running late as usual on a gift for her. Just wanted to let you know that I was thinking about you this morning. And about little Mav. Little soul with such a big impact on my life, and countless others'. I love you.