Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, October 6, 2009

Chloe's Birthday Pics

Us with the birthday girl

The birthday girl

The birthday party spot - our favorite - Benedict Street. Little miss didn't want any balloons - she now has a phobia of balloons, so we found these poofs to hang.

Busy crafting.
Lots of friends and fun
Here are some pics from little Miss C's birthday. She had such a great time. Thanks to everyone for coming. She made me smile several times today - they all made me smile, but at this age she has such an active imagination. After I picked her up from Mother's Day Out, she disappeared into the house. I was sitting at the kitchen table working on my paper and here she came dressed in scrubs with a stethescope around her neck. She peeked her head into the kitchen and said, "Julianne." I said, "what, baby?" She said, "I'm not baby, I'm the doctor." I carried on the conversation with her and asked her what kind of doctor she was. She said, "The kind that helps you push the baby out." OK, then. I went into her "office" and told her I didn't like shots. She said she would give me medicine to make me go to sleep and it wouldn't hurt. She wanted to give me two pills, then changed her mind and said, "Ashlee (actually) five pills." Then I pretended to be asleep while she pretended to cut my belly open. Such an imagination...

Onto a real doctor subject, we finally received the "ok" from the insurance company for the pain pacemaker for Greg's back. The appointment for the temporary one is tomorrow. Say a prayer that all goes well. If it works, he'll have a more permanent one placed sometime later.

I have a few more special requests this evening. My grandma on my dad's side has just been diagnosed with breast cancer and will be meeting with the surgeon soon. We have an uncle on Greg's side with cancer as well. A fellow heart mom, Vanessa (Owen's mom from the cute balloon pics) has a friend with a very sick little one. He has tetralogy of fallot and another serious medical problem. They have a caring bridge site at if you want to offer them any encouragement. Sorry for all the negative news, there are just several people who need prayers tonight.
I better go for now - more studying to do for a genetics exam. I've always enjoyed genetics. At least my theory paper is finished and has been submitted - that's a big relief. Love you all, jc

1 comment:

Anonymous said...

Loved Chloe's birthday cute...and the doctor story. What a trip she is. Will certainly pray for your grandmother and friends.