Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, October 15, 2009

October 15th

Today is Pregnancy and Infant Loss Rememberance Day. We lit a candle for Mav at 7:00pm tonight. They call it the wave of light. Everyone lights a candle at 7pm in their time zone in rememberance of the baby they lost - it ends up creating a wave of lit candles around the world. The website is http://www.october15th.com/ if you're interested or curious. Here's a video of our sweet boy. We don't need a special day to remember him, though - we remember him everyday. I just thought it was a nice sentiment, so we participated.
video

Things are about the same around here. Kids continue to spread germs around. Maddie was sick for several days last week. She's my handwashing germophobe, so if she got it, it must be easily caught. Greg and I have missed out on the sickness so far - thank goodness. We don't have time to be sick right now.

Update on situations: Greg had his pain pacemaker placed and taken out. He thought it helped, so he'll have a permanent one placed later in the month. My grandma met with the surgeon who thought she would be a good candidate for a lumpectomy, but things are moving painfully slow with this process. She has to have an MRI and see the oncologist, then go back to the surgeon. Baby Ian died (the friend of one of my heart-mom-friends). I've read her caring bridge site and hurt for her and her husband. It's such a difficult time - and still is. Say some extra prayers for them. Our uncle is in Texas now undergoing treatment for his cancer. He should be back in a few days. We're praying all goes well and he doesn't get very sick.

Greg was cleaning around the house this evening while I was finishing a project for school. He found the CD from Mav's funeral and we listened to it. Even without seeing it, I could still picture it all in my mind so vividly. Todd did a great job on the sermon. I think it was a good day to hear it again - that message is still so applicable to everything we're going through. He later found the DVD and watched it - I might later. We still need to download more pics and videos from the camcorder. The first time we used it since Mav died was for Chloe's birthday party.

I started clinicals this week and I've enjoyed them. I'm with Dr. J, an ob/gyn. He's my friend Amy's husband. I've really enjoyed talking to the women, and learning all these things that are new to me. Maddie has been curiously appalled by this rotation. Eventhough she says she wants to be an OB when she grows up, I don't think she realized that would entail "well-woman visits" - if you know what I mean. It will be completely different in a few weeks when I have sick kiddos screaming at me...

Maddie and Carter are on fall break now. Their last day of school was on Tuesday. They are glad to be home. I was glad to sleep in a bit this morning. We really don't have any great plans for the break. I'm hoping the weather clears up - I'm ready to see the sun again. We usually go to the pumpkin patch down the street and take pictures around this time. If the weather will cooperate, maybe we'll do it this weekend. Hope you all have a good weekend - love you all, jc

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