Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, October 4, 2009

More balloons

I'm taking a break from studying. Only so much a person can do in one evening without going completely insane. The house is quiet - except for the sound of Carter's cough. The kids have been passing it around for the past week or so. I thought I'd post some more balloon pics. Thank you all so much for sending them. These are from friends of my step-mom, Teresa. They work at Children's Miracle Network.

Their balloons did much better than ours.

Here's my sister, Heather, and baby Addie. I couldn't enlarge the pic without it being too "pixelated" - is that a word?

These pics are from Justin and Jill. They're our cousins on Greg's side of the family. Justin is a youth pastor in Texas and came by to check on us and Mav frequently while we were in Dallas. I had to post the message he sent along with the pictures. It brought tears to my eyes.

Greg and Juli,
I had the privilege of sharing Mav's story with our students tonight. We talked about how compassion and love enable us to leave a mark on our world. I was amazed today when I began thinking how Mav left an indelible mark on this world and how his sweet spirit echoes here and in eternity. We wanted to take the opportunity to be involved in the balloon release so attached are pictures of the group, Ryan (who was in the hospital the same time as Mav), and the balloons floating across Princeton. Thanks for sharing your lessons with us through the blog and for giving us the chance to share in the celebrations of his life of impact.


Justin and Jill

I was just tagged on facebook with this picture. My blog-friend, Mary helped start up the Michigan chapter of It's My Heart. They did their first heart walk recently - here's a copy of the back of their shirt - little Mav's name is on it.

Thanks, Mary.

This past week I had the opportunity to speak with an Oklahoma City radio station for a pre-recorded interview for Children's Miracle Network's upcoming radio-a-thon. I met them at Children's in the lobby and told them about Maverick. The other people that were there to do interviews had their miracle kids with them. I explained to the guys that I was the other side of the story - that not all the little miracles get to go home. I thought I could be strong and talk about it, but I cried a little. After I left, I thought about all the things I wish I would have said - like telling more about Maverick not just his medical conditions. I wish I would have mentioned his big blue eyes and long eyelashes, and how he liked his monkey and his mobile. Oh, well. I guess the point of my story is that more money needs to be raised for research for congenital heart defects and for new treatment options. Hopefully that point will make it across to the listeners if they decide to air it.

Since I've last written, Chloe has had a birthday. She's now four years old. Time flies. I still need to download the pics from her party, so I'll post them in the next few days.
Well, it's getting late and I need to go to bed. I have a paper to get finished in the next few days. It's for Nursing Theory and is a concept analysis on "adaptation." I think I have plenty of life experiences to understand that concept. Love you all, jc


Anonymous said...

I have been thinking about you and glad you are back to blogging! Hope the kiddos feel better and you do well on your paper! Happy Birthday to Chloe:)

Vanessa Blutrich

Lindsay said...

I hope school is going well. Glad to hear that the kiddos are well (except for that pesky cough). Happy belated Birthday to Chloe. I think of you all often, and I still miss my blue-eyed boy daily. Much love.

Anonymous said...

Hi Juli,

It's been a while since I've posted. Sounds like you've been busy. Thanks for sharing the pictures of all the baloons giving flight in memory of Mav. So many hearts he has touched...but also all the hearts Mav's family has touched. You all, a beautiful family, are loved and adored. I hope to see you all again next time I'm in OKC.



Juli said...

Thanks Vanessa.
Lidsay, school is going well. I really enjoy it. Thanks for the b-day wishes for Chloe. Thanks for missing Mav. We do too. I always knew he would gets lots of attention if you were with him.
Sherry, Thanks for your sweet words. I enjoyed seeing you in OKC. Thanks for taking time to meet us. Would love to see you next time you're here.