Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, May 9, 2009

Busy Days

We've been busy the past few days. Thursday I went to OKC with two of my friends. That afternoon I talked with Dr. Ward (peds cardiologist in OKC). He took a look at my TEE (heart echo) that was done while I was pregnant with Mav and said there is a new device that they may be able to fix the ASD with. He said the chance was better than 50/50 - probably like 60-70%. Now, you know I'm not a believer in statistics, but if there is the slightest hope of fixing this ASD without having an open-heart surgery, I'm all for it. This device would be placed in the cath lab at Children's in OKC. The same place Mav had his done. Dr. W's scheduler is supposed to be calling me to set something up for late June or July. If it doesn't work, at least I've tried the less-invasive route.

Friday Maddie stayed home with me and Chloe. The Little Olympics was that day, and there were only going to be a few people from her class at school. I had heard they weren't going to be doing much, so why make her go? Carter still had class, so he went. He's had plenty of days off this year when Maddie went, so all is well. Friday evening Carter went to a friend's house to play and Maddie was babysitting. I was cleaning up the kitchen and Chloe was very quiet. I was starting to wonder where she was and then I heard it, "Mom, wook, I paint my fingew nails." Those dreaded words, never meant to be heard from a three-year-olds mouth. I said, "Chloe, did you make a mess?" She said, "I jus got some on da table." We went into the living room to look and she said, "Woops, I got some on da cawpet." Nice turquoise nail polish. I told her to leave it alone and not to touch it. Unfortunately, I've been through this before and know the best thing to do is let it dry and cut it out. Our carpet is pretty long, and usually the polish just sits on the very top. I said something about cutting it out of the carpet, and she became very interested and wanted to get the scissors. I told her only mommy could cut the carpet. We had a discussion about nail polish as well. I was starting to clean her up and I thought I should take a picture. Upsetting, but priceless.

We're just here with Chloe again this evening. Maddie is at a friend's house and Carter went with his friend to The Lion King. It's on stage in OKC.

So far we have no big plans for tomorrow. I'm digging my heels in the ground to try to stop it from coming. Mother's Day is just a reminder that I'm missing one of my babies. Church here is out of the question due to the baby dedications. I'm happy for all of them, but I can't sit through it right now. We may go to OKC tomorrow or something. We'll see how we feel tomorrow.

As I was sitting here trying to upload a photo from the computer, I just got one of the best Mother's Day presents ever. I was able to pull up the videos we thought we had lost - from before Mav's birth to the first of November. I haven't been able to pull them up from the camera or from the computer before - it just showed a sign like the video had been broken. I had called a recovery company and it was going to cost between $400 and $1200 to get the videos back - if they could get them back. I called Greg in here and we watched the video from when Mav was born for the first time. Enjoy your babies tomorrow. Love you all, jc

A cute one of the kids eating worms and dirt we made the other night.


Anonymous said...

Love the pics of the kiddos and the worms, but I tell you I had to laugh out loud at Chloe's fingernails. Oh my gosh! Priceless is right.

I hope your day went well Juli. I know this may be a sad day for you. I don't even try to pretend I know what you are going through, but I hope you enjoyed being with your precious family this day.

I miss having my boys here with me...both living in Oklahoma. :(



Dianna Black said...

I just read this blog to Bryon and Lydia..they loved the picture and story behind the nail polish...some of my best pictures are like Chloe's nails. I have one of Garrett and Lydia eating potato chips off the floor as fast as they can before they got caught! I do hope you had a wonderful Mother's Day!! Because you ARE!