Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, May 3, 2009


Well, here we are. Tomorrow is the beginning of another week. Tomorrow morning Greg and I will be taking Maddie to see Dr. Ward - he was Mav's cardiologist at Children's in OKC. She has been complaining about her chest hurting and feeling funny for more than three years. I took her to the pediatrician three years ago to have it checked out and they did an EKG and all was well, so nothing further was done. After finding out about Mav but before he was born, I mentioned Maddie to Dr. Ward and he thought it sounded reasonable to have her checked out. So, that's what tomorrow is. She'll have a heart echo and will see him in the morning at his Mercy clinic. I'm concerned she might have an ASD. I hope I'm wrong. If she does, I suppose it is better to find out now than when she is 37... I'm praying that all goes well; however, nothing would surprise me at this point.

It was a pretty uneventful weekend. Carter went to a sleep-over last night, Maddie baby-sat, and Greg, Chloe and I just stayed around here. We slept in this morning. I've been catching-up on my sleep - finally. I went to the cemetery this afternoon. I can't tell you how difficult this has been. We both keep going over things - why did things go so wrong?

I'll let you all know how tomorrow goes. Love you all, jc

1 comment:

Bill and Mary said...

Juli ~ I can only imagine your concern (fear?) for Maddie right now. I am praying it turns out to be nothing...and that, if it is something, it's easily fixed without invasive procedures. My thoughts and prayers are with you. God Bless!