Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, May 18, 2009

I have a date - not the fun kind...

I have a date - not the fun kind - it's June 23rd. That's the day I'll have my heart cath. They're going to try to fix my ASD with a Helex Septal Occluder. For my medical friends, the website is if you're curious. My defect is on the upper end of the size range for this device - it's 18 - 20mm. In the reading it says the largest size defect should be 18mm, but in the study the largest defect corrected was 24mm. From what I've read, the rim can be deficient in about 25% of the space and it will still work. I haven't heard a percentage of how deficient mine is, I know the anterior aspect is deficient, and I think one side may be as well. I'm going in on June 10th to meet with Dr. Sperraza who will be placing this. I have some questions for him. It will be done at Children's in the cath lab. If they place it, I'll stay overnight at Presby. If they don't, I should go home the same day. All the reading I've done on these say they're really safe. I really hope this works.

Not alot of other news going on. Today was the last Monday of school for Maddie and Carter! I'm ready for them to be out for the summer. Love you all, jc


Bill and Mary said...

I will be keeping you in prayer on this date. Praying everything goes well and this takes care of the ASD.

Anonymous said...

Know that you will be in our thoughts and prayers. Aunt Pat

Anonymous said...

I will keep you in my prayers Juli. I hope the surgery is successful and that you feel so much better after it's all over.



Twin-Daddy said...

Dr. Sperrazza does a brilliant job, he put a heart cath and occluder in my 2 year old, he was out the same night and up wanting to play.