Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, April 10, 2009

Mav, fires, and what's next

This was a sweet picture of Maverick from Maddie's phone. I saw it for the first time tonight.

It's been crazy here in Oklahoma over the past 24 hours. Strong wind and wildfires have wreaked havoc. Thankfully, we missed the damage here in Shawnee.

I've managed to stay busy the past few days. Yesterday, my photographer friend and I went shopping for some props for her next special. We found some neat pieces. The photos from her up-coming white sale will be gorgeous. I'm going to take the kiddos to have their pics made. This is her blog if you're interested - After we got back into Shawnee, the kids and I had dinner with our friends, the Mays. Greg worked a little late yesterday, so we took dinner home to him. He's been busy the past couple of days and has to see patients for awhile tomorrow.

Well, today Greg and I were talking about what's next for me. I applied to graduate school, but won't find out if I'm accepted for about six to eight weeks. I called the transport coordinator (my boss) today to talk about different options for returning to work. She wasn't in the office today, but said she'd get back with me Monday or Tuesday. I think the care I provide to the babies and to the families would be much more compassionate after all we've been through. I've always loved this job and have gotten a lot of satisfaction from my work. I feel like I'm doing something that makes a difference. I've also realized, though, that at the end of my life I won't look back and wish I had worked more. That's what I meant by options. I'm checking into possibly going back part-time. We'll see what happens.

I went shopping for Easter goodies this evening. I was looking at things for Chloe, and on the other side of the aisle there were baby toys. For some reason, it hit me pretty hard - right in the middle of Big Lots. I didn't make a scene or start bawling, but it made me tear up. My heart just felt heavy. I couldn't help but think how this should be his first Easter. I've thought about the pictures I had made of Maddie and Carter when he was just three months old for his first Easter. They put him in a basket with Maddie sitting next to him. They were so cute. I just wish things could've been different for Maverick.

Today Chloe and I had some errands to run. We went to the bank and she got some popcorn and candy. We had finished there and were in the vehicle going to our next destination. She said, "Mom, I wish Maverick could go wis us. I would give he popcorn and candy." I told her, "I wish he could, too."

We'll have a pretty busy day tomorrow. An Easter egg hunt in the morning, coloring eggs in the afternoon, making a banana pudding for Sunday at some point, and getting out the resurrection eggs to talk to the kids about the real reason for Easter. I should have some cute pics tomorrow. Carter and Chloe get to hunt eggs. Poor Maddie, she's too old this year. Hope you all have a great weekend. Love you all - jc

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