Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, April 16, 2009

I actually wrote this on Friday...

Here's Chloe yesterday. She stayed at home with her daddy while Maddie and I went to her 12-year-old check-up. Maddie had to get a couple of shots yesterday. One stung pretty bad. As she was trying to hold back tears, she said, "Mom, that really hurt. Will you take me to Benedict Street?" That's the lunch spot I like sooo much. So, we had lunch before I took her back to school.

We've had a pretty busy week. Maddie's birthday was Wednesday. She wanted to go to McAlister's deli for dinner, so we did. We had cake at home afterwards. We had issues with our camera, so we had to take pictures the old-fashioned way with real film. It will be a while before I can post them. She's not having a big party this year. Carter didn't get to have one because Mav was pretty sick at the time and we really couldn't plan anything. So, it wouldn't be fair if she had one. She wants to have a "girl's day" this Saturday. She and I will go shopping and get her nails done.

The kids have had friends over the past two nights. Their friends, Tommy and Jordan, have a new baby brother. Their mom and dad are at the hospital, so they've been with us. We went to see little Noah yesterday after school. He is adorable. He's the same size Mav was, just an inch shorter. Sigh... There is nothing sweeter than a newborn.

Speaking of babies, I spoke with the medical director of Neoflight on Wednesday. They need a person .75 (which is almost full-time) on nights. That won't work for us right now. So, for the time being, I'll be at home with the kids. I should find out in about a month if I'm accepted into the pediatric nurse practitioner program. If so, I'll just enjoy the summer with the kids - the fall will be hectic with school. If not, we'll decide what to do then.

For now, we have quite a few projects to work on around the house. We're still playing with the idea of moving, so we need to get things in order around here. I've finished one project today. We live in a 1950's ranch style house that we renovated about five years ago when we bought it. It has a small wet bar area. I've always stored our wrapping paper and gift bags there. It's now cleaned out and spruced up. It's our coffee bar area. Chloe is thrilled. She was "helping" when I was taking everything out. She saw the sink as I removed a storage box and screamed, "There's a sink!" It's pretty bad that she has lived here all her life and has never seen the sink. She had fun playing with it after I finished up. Tomorrow I'll be hanging new blinds in the living room. Love you all, jc


Anonymous said...

Hi Juli,

I've been missing your posts. You sound like you guys have been really busy.

Happy Birthday to Maddie! Chloe's picture is cute. Hey, is that a white schnauzer in the pic with Chloe? Tom and I have two white schnauzers, Dusty & Lacey. They are 9 years old. Dusty barks all the time. lol

Hope you have a great weekend.



Juli said...

Yes, we have been busy. Our schnauzer is actually light silver. His name is BamBam. We got him from a rescue and that was his name. He's not a big barker. When we were looking for a dog, I emailed the lady at the rescue and told her I was looking for a dog that didn't yip all the time, that didn't shed, that was pretty low-key, and that was good with kids. Her response was, "sounds like a cat." I responded, "I'm allergic to cats."

Anonymous said...

Well Bam Bam is a cute name and sounds perfect for your family. :)

Glad you and Maddie had fun with your girl's day out.

You and Greg will have good days and bad days but the bad days will get farther apart although you will never forget little Mav. It's one day at a time.