Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, July 5, 2009

Me and the Firecrackers

Well, here we are on the fourth of July. They are quite the little firecrackers. We went to our friends', the Blacks, house Saturday evening. The kids popped a few firecrackers and then the storm came in. It rained, poured, thundered, and lightninged (is that a word?). The kids didn't get to finish the festivities. We all went in the house - kids playing, adults talking - when the power went off. That's just one of the exciting benefits of living in Oklahoma. We left to go home a little after nine. Miss Chlo passed out in the car on the way home. I couldn't resist taking a pic when I put her in bed. I took some other pics of the kids with my regular camera - I always do on the fourth for some reason. I would have uploaded them as well, but the electricity issues fried our printer and that's how I download the pics. So, I'll save those for another day.

We went to church today, then Greg took Carter and Chloe to the movies. I stayed home to work on arrangements for my school. I have to make a trip to Mobile, AL the end of August to do an orientation for the nurse practitioner program. I'm not the best at making travel plans. I tend to stress over the details. That being said, I still don't have the plans confirmed. I'll have to do that this week. I have decided to do the full-time program. I've been in touch with the director of the pediatric program and explained my background and plans and she has given me her blessing to do the full-time track. That makes me feel better, because so far everyone else was strongly suggesting I do the part-time track. I should be finished December of 2010. I know at some point in the program I really want to do a pediatric cardiology rotation. I learned so much during Mav's life, but there is still so much to learn. It's fascinating, really - the heart. Every organ in the body depends on it and when it isn't functioning properly, it wreaks havoc on many other systems. We saw that first-hand with our sweet baby boy. Maybe someday there will be more options for cardiac issues such as his. I hope so.

Maddie didn't go to the movie with the others today. She and I actually went to a movie Friday night. We went to see "My Sister's Keeper." I read the book several weeks ago. When my friend Kristi came in for my procedure she asked me, "Are you a masochist?" for reading it. If you haven't heard of it I'm not going to spoil it for you, but it was a very good book. Several things just hit close to home. Maddie and I had to leave about an hour into the movie. I could tell it was making her uncomfortable. I think it's rated PG-13. It was the bloody scenes that she didn't like. And to answer my friend's question, I don't think I'm masochistic. Somehow it's comforting to know I'm not the only one going through tough issues. I found several other blogs of people who have lost children and sometimes it's just nice to know you're not crazy.

Hope you all have a great week. Love you all, jc


Kim said...

Carter and I saw My Sisters Keeper last night. I cried throughout the entire movie. I cried for the people I know that have gone through the pain of cancer and died, and I cried for the mom in the movie and all the ways she fought for her child. Her spirit reminded me so much of yours. You fought and fought for little Mav. If you found that something was wrong with him and no one else notice, YOU made sure things got corrected. You went way beyond what most of us will ever go through for our children. You amazed me then and you amaze me now! I love you!

Anonymous said...

I just finished reading that book and eople asked the same of me I know our situations are so completely different but I do understand from our angle the "comfort"(probably not the best word) of knowing others have struggles and make it through. Make sense?

Anonymous said...

You seem to always have good shopping tips, I am looking for bedroom furniture for my 3 yr old daughters room. I'd like to have something she can grow in to. I'd really like for her to have a full size bed, at least one night stand, and maybe an armoire. Any ideas of where I might find something unique in OKC?

Anonymous said...

Julie & Greg: My husband and Greg's mom are first cousins. We know first hand the depths of your sorrow having lost our grandson to leukemia 2 years ago after a 2 year battle. Our son John and his wife Tracy have a website at that you might like to visit. The strength of their faith in God (as will yours as well) has sustained us all during our pain. I wish I could tell you the hurt will go away but it doesn't, but God seems to always bring comfort just when we need it the most. Know that you are in our prayers. Bob & Martha Whitaker

Juli said...

Kim, Thank you. I tried to call you tonight, but couldn't get through. I hope you have a speedy recovery, friend. Love you, too.

Anon, It makes perfect sense. I'm glad someone understands. Just curious who you are and what's happened in your life.

Anon, HMMM.. I don't have an unlimited budget, but if I did there is a place in OKC up around Nichols Hills called the Wood Garden owned by Terry Carty. They used to have beautiful stuff. I haven't been there in quite a while. If you're on a limited budget, look on Craigs list and find something style-wise that you like and paint it a fun color. That's what we did in the girls' room. It's our old Fontana bed and armoire painted bright pink.

Martha, I'll definitely check out their site. Thanks for the encouragement. I know we'll get through this, but it is so hard sometimes. Thanks for your prayers.