Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, January 12, 2009

4 months old

My precious boy is four months old today. Guess what he got for his four month birthday? A nitric vent and some viagra. Wow, what a great gift. The attendings change at the beginning of each week, and Dr. Gessouroun has some new ideas for Maverick's little heart. He's trying him on inhaled nitric oxide, it's a gas that goes through his ventilator and it dilates his pulmonary arteries. The thinking is that by dilating the pulmonary arteries, his right ventricle won't have to work so hard. He has also stopped the milrinone and is starting him on viagra - yes, viagra. It is used the same was as the nitric, just in an oral form. They're starting the viagra today and in a few days will wean him off the nitric vent. FYI - viagra was first used for issues like this, but the side effect caused a lot of attention... He is still very puffy and his output was slowing down when I left today. Just keep praying - there has to be a reason for all this. I did get to talk to the infectious disease doctor today, and he's not going to start him on ampho-b, but he is going to have an itraconazole level drawn to see if it's in a therapeutic range (that's the med he's been on for a long time for mold infection). He talked about switching it to IV, but couldn't because of Maverick's kidneys. He's also having his urine collected from tonight and spun down. They'll take the sediment in the lab and see if there is any mold growth. There just has to be an explanation for all this. I just want him to get better so badly. jc

1 comment:

Lindsay said...

Happy 4 month Birthday to my sweet boy! I'm still praying for you. Please continue to be strong and get better soon!