Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, January 14, 2009

Still puffy

Mav had a good night last night, and was having a good morning today. His blood gases are still good, and peak pressures on his ventilator are 20's-low 30's. His output from his dialysis had slowed down some, but this evening for the past 3 cycles it has been way up. Maybe he's finally ready to let go of some of this fluid. His CRP was down to 2 today from 8 and his white count was ok. He had an episode this afternoon - he was vomiting green. We looked at the xray from this morning and he had some bowel loops with stacking, but he's still having stools - just not as much as he should be having. They're going to restart feeds this evening at a slower rate and keep an eye on him. The kids came up to see him today. They're going to start weaning the nitric vent tomorrow. I'm hoping he has shrunk by the time I see him tomorrow morning. More tomorrow - jc


Anonymous said...

Juli - you don't have to post this. I was talking to Vicki friend from Edmond that used to live in Okmulgee with me...anyway, she has a close friend, Marti, who is friends with Ruth...follow me on this one would you? I am going to tell you we really live in a small world. Anyway, Marti has been friends with this lady, Ruth, for many years. Ruth got sick and moved to Shawnee to be closer to her son I think...anyway, her son is a doctor....and is friends with Greg. He was telling Ruth about Maverick and Ruth told Marti about this poor sick little baby that had heart surgery and was born in Dallas, etc. Come to find out they were talking about Maverick. So - tell Greg that for me would you....just wanted him to know that his doctor friend was very concerned about Maverick also. Just goes to prove that Maverick is being lifted up in so many prayers. I was so glad that I wasn't with Maverick tonight when I started feeling sick. I was fine at 4:30 p.m. in my meeting at CMN Office, then about 5:00 p.m. I started feeling it coming on. You can't tell me God doesn't have His hand in this whole thing with Maverick...I would have been in Maverick's room probably at 5:45 but felt it coming on at 5 p.m. God knew he better warn me not to go see Mav. Hopefully, I can load up on Vitamin C and this cold won't go full blown. You might go ahead and see if you can get someone for Saturday night just in case - I sure don't want to take a chance. I guess I have Justin to thank for this! Love you and you take care - hope you are getting some very much needed rest. You truly are a wonderful blessing to everyone you meet and the kids are so lucky to have you and I am blessed getting to know you you lots - Teresa..oh I almost forgot. Vicki believes in natural stuff and we were talking about antibiotics, etc..she was saying that niastatin and diflucan or something like that helps rid the body of mold and fungus...just a thought. (Don't know if I spelled them right.)

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