Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, January 3, 2009

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This was Maverick this evening. He's such a cutie. You can't see his pretty blue eyes with these pictures - and his eyelashes are so long - they look fake. The past couple of days he's had us on yet another roller coaster ride. He had some issues with his blood gases Thursday night. Friday he was doing really well and I held him. Friday night, I was getting ready to leave and looked at his dialysis bag. The output was green and had some flecks of dark stuff in it. His has always been a peachy color. I started to panic. The attending came in and looked at it and thought the same thing I did... It looked like he may have a perforation in his intestines causing his stool to leak out into his abdomen. They called the pediatric surgery resident in and took some x-rays. Thankfully there was no free air in his abdomen - that is a sign of intestinal perforation (or a hole in his intestines). They would've wanted to do surgery. That in itself would be very complicated for Maverick and would've meant he would've had to be put on a different - riskier- type of dialysis if he made it through surgery. They started him on antibiotics and sent a culture and gram stain. Greg and I stayed close to the hospital last night. His vital signs were still looking ok. This morning we found out there were no organisms on the gram stain and the cultures were negative. This means he probably doesn't have a perforation because your bowel has lots of bacteria and there was none in his fluid. This evening his dialysis output looked pretty normal. The nephrologist hadn't ever seen anything like this and no one really knows what it was. They have thrown out that it might have been a pocket of old blood or something that got disrupted and caused it. I'm just thankful and continuing to pray that it clears up and he has no more issues like that. Through all this, his vitals have been stable. He had his best blood gas in a couple of days this evening. A lot of his blood gas issues are metabolic. They're having to tweak his IV nutrition to help with that. As I'm sitting here typing this I get a call that they've had to restart the dopamine. More when I can - jc

4 comments:

Anonymous said...

What a cutie that Mav is! You can tell he loves his Mama as he looks so comfy in your arms. I'm so sorry to hear about the roller coaster rides you all have been having. Will continue prayer.

Sherry

Brenda said...

Mav looks so cute and alert in this photo! I know it's so hard for you all with the roller coaster rides but he really is looking more and more healthy with every photo you post. And he looks so very sweet in your arms where he belongs! Sending more prayers your way.
Love you!
Brenda

Jessica said...

I am not sure how I stumbled upon your blog, a random link from something blogger does, but I wanted to let you know I read some of your story and I am praying for you and your family and little Maverick. You have such an amazing strength. I pray that God will show Himself to you and your family daily. I will continue to pray for you and check back to see how things go. May God be with your and continue to bring you strength, encouragement, and comfort as you face this year.

Dianna said...

Juli,
It was so good to talk to you yesterday! I just wish I could have been there to give you a hug...I just looked out the window today and asked God to touch Mav in a special way..to let him know how precious he his to him and to all of us..I prayed for a quick healing, to let him go home soon and that we all never stop thanking God for all he has done.. I love you ..
Dianna