Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, January 20, 2009

Bright eyes

Mav had a good night last night and a good day today. The only issue we had was that his white count was up to 19 today. His CRP was 2. He's been a little warm the past 24 hours as well - his temp has been up to 37.8 a couple of times, and he's usually around 36.5. Dr. Gormley ordered cultures of everything and gave him a dose of vancomycin - I'm very thankful for that. He's still on several other antibiotics as well. He still looks good, but that's how he looks until things get really out of hand. We just have to catch things while they're sneaking up, not after they're staring us in the face. He had some poop issues today and was worrying me. His stools were completely serous (yellowish liquid). The GI doctor came in and looked at the diapers I had saved and said they looked like stools of someone with a virus. He left, I felt a little better. The next diaper was huge and normal and had a big mucous plug in it. I think the boy had a plug in his plumbing. He continues to be negative on his intake and output, but his cheeks look a little chubbier to me. I think he might be putting on some good weight. Weaning continues on the ventilator. He's now at a rate of 25 and his oxygen is at 30% - no other vent changes. Nor-epi is off, his blood pressure is still a little low at times. Dialysis is going well. I'm just praying he'll continue on in the right direction. More tomorrow - jc

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