Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, January 13, 2009

Paci time

Here's Mav today. He is actually looking better - yes, this is better. The bruising is starting to fade a little and he's slowly getting less edematous. He has his paci back and was actually interested in it today. We had to cut the side off and file it so he could use it with his tube. He was about 100mls negative on his intake and output for the past 24 hours. His central venous pressure was 9-13 today - that's low for him. His blood pressure is a little on the low side, so I'm not sure if the lower CVP is related to that or if it's because the viagra and nitric are working. The plan as of today is to leave him on the nitric vent for about a week. His white count is down, but his CRP is hovering in the 8 range which is odd for him. Usually after an infection starts to clear it goes down pretty quickly to <0.2.>

Thanks to all our friends and family who have visited, those bringing us the great meals, and to those who are keeping an eye on Mav in the evenings. I'm able to get a few things done around the house, help with homework, and hang out with the kids for a few hours before bed without worrying about Maverick. I wouldn't be able to keep my sanity without you all. I'm so blessed to have each one of you. Love you all - jc

1 comment:

Anonymous said...

Our family has been praying for Maverick and your family the whole time. We've now started to pray for you all additionally every time we pass your home. It is great because if we forget, the girls remind us. I figure we are praying for Mav & your family 4-8 times per day now. Let me know if we or I can sit with Mav in the evening some time. We are happy to help. Kevin & the Hannas