Our sweet boy loves his paci. He had a good day eventhough his white count is still high and his CRP is even higher (32 and 42). He's still occasionally running a fever. All his blood cultures are still negative and he still has the pseudomonas in his lungs. He's trying hard to get that ET tube out (his breathing tube). He's still weaning from the ventilator like a champ. His rate is down to 14 and his gases are still good. They were having some issues with the cycler (dialysis machine) last night. The dialysis nurse was coming in today to see if he needs to go back on manual dialysis. She hadn't been there yet when I was there this morning. Greg is there now, but I haven't heard from him. He's trying to spend as much time as possible with him on the weekends since he's back at work during the week.
Carter had a birthday party to go to today and is spending the night tonight. Maddie, Chloe and I are hanging out at the house tonight. We've played Candy Land and painted fingers and toes. I've been on the internet trying to find some more info for Maverick. I think I've found a better formula for him - I'll run it by the doctors tomorrow. I'm always in a quest to find some answers for our complex little guy. Keep praying for him to respond to these antibiotics. We need to get this infection under control. More tomorrow - jc
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