Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, January 24, 2009

Love that paci

Our sweet boy loves his paci. He had a good day eventhough his white count is still high and his CRP is even higher (32 and 42). He's still occasionally running a fever. All his blood cultures are still negative and he still has the pseudomonas in his lungs. He's trying hard to get that ET tube out (his breathing tube). He's still weaning from the ventilator like a champ. His rate is down to 14 and his gases are still good. They were having some issues with the cycler (dialysis machine) last night. The dialysis nurse was coming in today to see if he needs to go back on manual dialysis. She hadn't been there yet when I was there this morning. Greg is there now, but I haven't heard from him. He's trying to spend as much time as possible with him on the weekends since he's back at work during the week.

Carter had a birthday party to go to today and is spending the night tonight. Maddie, Chloe and I are hanging out at the house tonight. We've played Candy Land and painted fingers and toes. I've been on the internet trying to find some more info for Maverick. I think I've found a better formula for him - I'll run it by the doctors tomorrow. I'm always in a quest to find some answers for our complex little guy. Keep praying for him to respond to these antibiotics. We need to get this infection under control. More tomorrow - jc

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