Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, January 7, 2009

Happy Birthday Carter

This is my other sweet boy, Carter. He turned 8 today. We had pizza at home and sang "happy birthday." Carter requested carrot cake (one of my favorites), so that's what we had. We may have a party this weekend, but we're going to have to plan it last minute because Maverick is having a rough day.

He's still very edematous. They changed his dialysis percentage to 4.5% - that's the highest - to try to get some of this fluid off him. His first cycle on it yielded 55mls which is better than his other cycles today. He's having some ventilator issues due to all the edema. They may have to sedate and paralyze him tonight. We'll just wait and see how he does. His last gas was actually better than the previous ones, but his peak pressures are high. We're just praying the dialysis works and that will resolve some of his vent issues. If he doesn't get some extra fluid off in the next 24 hours, they're wanting to do a heart cath tomorrow to see if there is some kind of structural issue...

My mom flew in today. I was so glad to see her. I was having a rough day yesterday and she sent me a text last night asking if I could pick her up at the airport at 3:30. Thanks for sharing her, Brown. More tomorrow - jc

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4 comments:

Anonymous said...

Julianne,
I'd be happy to come up and sit with Mav this weekend sometime, especially if you need to have Carter's birthday party. Just let me know when? I'm not scared of those machines.Love you guys. My hopes and prayers are always with you.
Michelle

January 7, 2009 at 9:42 PM
Anonymous said...

I am earnestly praying for you, sweet mav and your precious family. You and your family are in my thoughts daily. Please let us know if you all need anything.
The Huffmans

January 8, 2009 at 8:02 AM
Anonymous said...

Such a cute picture of the Birthday Boy Carter! And I love the pic and story of Chloe and her baby too.
I'll keep praying for Mav to get through this setback too. Very glad your mom is there with you now. Will help you, Greg and the kids as work and school get started again too. Bet you never knew you could juggle so well, huh!
Love you!!
Brenda

January 8, 2009 at 9:12 AM
Lindsay said...

Happy Birthday to Carter! I'll be praying for my sweet Mav (and for all of you as well). I wish I lived closer to y'all. I'd love to come sit with him one night...

January 9, 2009 at 12:13 AM

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