Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, January 15, 2009

Losing weight

Here is sweet little Mav today. He can see again! He was over 200mls negative for yesterday and, as you can see, he can open his eyes pretty well. He was happily looking at his mobile today. His white count and crp continue to go down. They're tinkering with some of his heart medications and have started weaning the nitric vent today. His bottom is looking a bit better. His abdominal x-ray this morning looked better, so they started feedings back up. He's still having quite a bit of green secretions coming from his NG tube, though.

My darling husband had a disheartening concern that he expressed to me today. He said I always refer to Mav as "MY sweet boy" or MY whatever I call him that day. My answer to him was that I am the one writing all this, so I put MY. So, to everyone out there keeping up with Maverick, he really is OUR sweet boy, and I am not trying to omit my husband from the equation when I'm writing all this. Sorry, Greg, no harm intended. And, just to let you all know, MY sweet husband got up early this morning and helped the kids get ready, made arrangements to get them to school, and went to OKC for an appointment, then went to see Mav. He did it so I could sleep in. It was nice. Thanks, babe.

Well, keep praying for no other complications. We'd really like to take the little guy home soon. Love you all - more tomorrow - jc

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3 comments:

Anonymous said...

Juli,
Good job, my friend. I, too, have made the mistake of using MY too freely as concerns our kiddos. It's nice to know that the hubby wants some "credit" :-) Way to go, Greg!

Mav looks sooo much better today. He made us all smile. Much love and continued prayers,
Amber

January 15, 2009 at 10:33 PM
Unknown said...

Hey Julie, Morgan and I just wanted to say hang in there. We think about you guys every day. Our prayers are with all of you.
Stacy and Morgan

January 16, 2009 at 10:33 AM
Anonymous said...

Juli,

He looks so darling in this picture. Can't wait to see him. I've been sending you all these messages and I finally figured out I've been using the wrong gmail account. What a goofus I am!! So, you probably haven't rec'd any of them. I'm praying so hard that you get to bring your sweet boy home. I can't imagine how hard this has been. I so admire your faith and courage. Your family is an amazing testimony. I'd love to sit with him, I know the list is long, but you know I'll be there when you ask. Love ya, Carol Bass

January 16, 2009 at 2:15 PM

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