Sleepy boy

Maverick was just worn out today. I'm not sure what kind of excitement he had last night, but he was resting well today. He would wake up for his vital signs and when we turned him, but other than that he was out. His numbers still look good and he's still getting the fluid off. He's on more than full feeds now so he can get some weight on. So far he's tolerating the ventilator weaning well. The nitric vent should be off this evening. He's still having some issues with his blood pressure and he's still on nor-epi. His propanolol and viagra could be causing some of the blood pressure issues. They are weaning his fentanyl drip and started him on methadone today to help him come off the pain med and that will hopefully help with his blood pressure. His little bottom is looking much better, and today when I was getting ready to change him he made a slight little kick with his left leg. It was very slight, but I saw it. The therapist, Peggy, says he's getting some hip movement and deltoid movement back as well. Don't get me wrong, he won't be swinging at us anytime soon, but it's slowly coming back. The neurologist said it could take 4-6 months or longer - the official name they used was "critical illness polyneuromyopathy". I've learned all kinds of big words so far. I'm sure Maverick has too. With the other kids, we would listen to a CD in the car that had an abc song on it. They sang a word and then made the letter sound three times behind it. I'm sure Mav's "ABC" song will go something like this:

Albumin, albumin, a a a; Blood pressure, blood pressure b b b; ceftazidime, ceftazidime c c c; dialysis, dialysis, d d d; enteropathy, enteropathy e e e; flaccid, flaccid, f f f ... You get the picture. I just have to laugh.