Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, February 11, 2009

A better day

Mav's gas was a little better today, but not good enough to wean, yet. He looked and acted like he felt better and was awake quite awhile today. The peripheral IVs are still working, but one was a little puffy. Another one of my Mediflight friends started another one today in his scalp (thanks Marla). We're trying to get by on peripheral IVs until the first part of next week. I just want to make sure the infection is really cleared up before another central line is placed. The pillow is working for Mav's bottom. It doesn't look any worse and looks less red. It's going to take awhile to heal, though.

Mav got a bunch of valentines from a first grade class today. My friend, Gaynell, brought them by with lunch today. Her sister is a first grade teacher and the whole class has been praying for Mav. They made pictures for him last month. I have them all over his room. They're so cute. It's funny the things kids think of. One picture has Mav on a hospital bed frowning and there's a skunk by the bed. Another one has me throwing Mav up in the air and there's a pink pig under me; then there's one with Jesus calming the waters and he's saying "be cwiite." So cute.

Thanks to Holly for sending the pic to the blog. She's sitting with Mav tonight. I tried to take a picture today, but it wouldn't work. I need to get a memory card.

I've enjoyed hearing from you all and finding out who's keeping up with us. Keep them coming. Love you all - thanks for everything - jc


Anonymous said...

He's beautiful.........I am going to meet him last week of the month if everything works out in my schedule. Think he'll like me?
Happy Valentine's Day
Lu Anne

Anonymous said...

He sure is cute. I love that dimple in his chin. Lots of well wishes for your little valentine.

Anonymous said...

So precious. We are still praying for you and sweet Mav daily!
Cindi Draper

Laura-Marie said...

I don't know if y'all ever used Dr. Sandell's Butt Cream from Med City, but they think it's the best stuff...maybe I can see if there is some way I can pick some up Saturday. If not I have an expired tube in my fridge, who knows it might still work, it's worth a shot. The video is very sweet, it just made me pray harder for that little fella. His eyelashes are so long. Keep your chin up.

Anonymous said...

I haven't said anything about medicine for Mav's butt cause the stuff I used is so old. It was mixed in the pharmacy for my kids and I loved it but the label says it is a mixture of something called Quest 10% / aquaphor 300 gm.Quantity 240GM MP. I have searched the internet to see what Quest is and cannot find it. All I find is a drug company called Quest. The date for this med is 03/07/03. It worked great for Josh. My guess is is that it was a steroid of some sort. You've probably tried something similar already, but I still use it on rashes in that area at times and it still works. Good Luck...Lu Anne