Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, February 23, 2009

Just a quick update - I don't have time to let it all out right now. Over the last six hours Mav's H/H and platelets have remained the same - which means for the time being the bleeding has stopped. He's on a lot more ventilator support due to all the swelling, but his last two gases have been improving. He's negative on his I/O's for the night shift which means he has gotten more fluid off than they've put in. Thanks for your prayers and concern. I'll update more later. Love you all - jc

13 comments:

Anonymous said...

Greg, Julie and family,

We want you all to know that we are praying for Mav and the whole family! May God bless you all and give you strength!

Connie Benson (Melissa Laiming's mother)

David said...

I'm so glad to hear that the bleeding has appeared to have stopped. I hope this leads to a string of small victories for your little guy. Take care,
Meredith

Lori Merrill said...

Hey Greg & Juli,
I am keeping up with your family's progress. I didn't know how to respond so I haven't. I am praying and will continue to do so. He is a cutie. Bless his heart and yours. In HIs Love,
Lori Merrill

Anonymous said...

Praying for you.
The Crawleys

Patsy said...

Julie and Greg,
Please know, I am thinking of ya'll often. I have been keeping up with Maverick through the blog but feel bad I have not posted until now. Mav is such a fighter. I am so sorry for everything your family has gone through in the last 5 months. Your right it is not fair.
Patsy Snider

Bobbie Decker said...

Hi Juli, My daughter, Gordona has been telling us about Maverick. Wes and I have prayed for Maverick from time to time. I just visited Mavs blog just now for the first time. I am so sorry for what all of you are going through. We just prayed again and we will not let up this time. Forgive us for being lax on our prayers. I am so sorry. My heart goes out to you and your family and to Maverick. We are praying for Gods supernatural healing. God bless you all.
Bobbie Decker.

Leanne Howard said...

I understand it's a tough day. I wish I could do more than pray for for your sweet son and your family. You are all heavily on my mind. I pray that the assurance that you all are being tenderly cradled in God's hands is so very real to you in the midst of your weariness. We contintue to lift you up.

Anonymous said...

My precious friend, I know you have a lot going on right now and I don't want to take up your time but I really wanted you to know how sorry I am! I hurt for you and your family but rejoice in knowing that Maverick is finally totally pain free and at the feet of Jesus. I know that fact doesn't make it easier to let him go but hopefully there is some comfort in knowing that he is in Jesus' care. Please let me know what you need. If you need to talk or if you need to not talk - what ever. I love you and am very sorry for all of the hurt you have gone through over the past five months. My thoughts and prayers continue for you and your family. lp

Robyn said...

Juli,

There are no words to express what you are going through right now, other than my condolences. I am so terribly sorry for your loss, and I pray that Jesus is holding baby Mav in his arms right now, free of pain and worry in his heavenly home.

My prayers are with you and your family.

Janice Maynard said...

Greg & Julie, I know your hearts are heavy right now and I'm sorry doesn't seem to lighten the load. This morning, at 7:45 a.m. I wrote Baby Mav's name in my prayer journal in purple ink. All other requests are in pencil. His name just jumped off the page at me and I knew he needed extra prayers. Now I will go back and write COMPLETELY HEALED! My prayers are with you and your family.
Love and Prayers,
Janice Maynard

Anonymous said...

Juli and Greg,

My heart is just breaking for you and your family. Your Immanuel family and friends love you dearly and will be there for you no matter what. We will be asking what you need and when you need it and will provide it. With much love and sincerity of heart. Candace Roberts

Brenda Thompson said...

Sweet Juli, Greg, Maddie, Carter, Chloe,

I am so very sorry for your loss. Words cannot even begin to express what I feel for your family today.

Maverick was such a sweet treasure. Precious little boy whose life had a great impact on all. This blog, while I am sure has been difficult to keep up, has allowed your precious son to touch the lives of men and women all over the world. All our hearts are heavy for you now. He will be missed by many.

I love you all. Hold tight to each other. Please let me know if there is anything at all I can do for you.

Love, Brenda & Shannon

Anonymous said...

Please know that we are praying for you and your family for comfort, and peace. Please know that we are here for you if you need us.
the Huffman family.