Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, February 22, 2009

Say some extra prayers for Maverick. He's having a rough time. He's bleeding inside from the attempted heart cath. He's getting more blood this morning, and all that extra volume is making him swollen. He can't open his eyes this morning. The swelling makes it hard for him to breathe, so his vent is back up to a rate of 22. He's all purple from the bleeding - for my medical friends/family he's not in DIC - his coags are fine this morning. They stopped the heparin drip yesterday and gave him some vitamin K then to help with clotting. This is so unfair and I certainly don't understand. The procedure we were hoping would turn things around for him didn't even happen and he's having complications from it. Please pray that the bleeding will stop. He's such a fighter and deserves a chance.

1 comment:

Anonymous said...

Julie and Greg,
I wanted you to now that our church (faith princeton) is specifically praying this afternoon for Maverick. I cannot imagine the level of frustration but our hope in the Lord does not disappoint. Hang in there.

Justin Dunn