Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, February 5, 2009

Fairly uneventful day

Mav had another fairly uneventful day today. No CBC was drawn this morning, so no numbers to compare. The blood cultures from the third are negative so far. The cardiologist came by today and said they are planning on treating him for the pseudomonas for six weeks just to be safe (IV antibiotics for six weeks). I held him again today and he seemed less stressed being moved. He stayed awake for just a little while and then fell asleep while I was holding him. We rocked and rocked. His poor little bottom is still painful. We've scrapped the coatings of various things and have gone back to no-sting barrier and oxygen. At least when the oxygen was on it wasn't getting worse. We've had lots of visitors this week and I've enjoyed seeing everyone. We're having a special visitor tomorrow. Dr. Mendeloff will be at Children's in OKC to help with a surgery and he's coming to see Maverick while he's here. We'll be happy to see him.

My phone is still giving me problems sending pics, sorry. I'll post one as soon as I can. Thanks to everyone for sitting with Mav in the evenings and for the great food. Love you all - jc

1 comment:

Anonymous said...

dear juli,
i love the picture - he is indeed very cute! i am happy to hear he is doing well and i am happy for the peace of mind that must afford all of you. always in our prayers,
karlin and family