Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, February 20, 2009

Me and Mav rocking today. His gas was good this morning, but he was breathing fast, so they didn't wean him. We weren't sure if he wasn't tolerating the four hour cycles on the dialysis or what, so that was changed a bit. This afternoon a CBC (blood count) was drawn and his H/H were low - he was low on blood. That explains why he was breathing so fast. He should be better tomorrow morning. Some good news - his white blood count was 14 (that's the count that can indicate infection). That's the lowest it's been in quite awhile. Thanks for the prayers! The cardiologist came back in today and the tentative day for the heart cath is Monday - if Mav seems ready. Other than that, there are no real changes. We'll just hang out over the weekend and work on weaning the vent. Thanks for everything - you all are great and we couldn't do it all without you. jc

No comments: