Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, February 1, 2009

Not too happy

Here was Maverick on Saturday. We were changing his shirt and he didn't like it too much. I hate to say it, but a few more setbacks happened yesterday. Mav's white blood cell count was up and so was his CRP. Mav had a blood culture that was positive for pseudomonas. That means he has an infection in his blood. They changed his antibiotic yesterday, so hopefully he'll get better quickly. Along with the infection came an increase in ventilator settings. He's now at 50%, Rate of 20, Pressure support of 14/5, tidal volume is still 24. It seems like every time we see the light at the end of the tunnel something happens and things go black again. He didn't have any fevers yesterday or last night, though. They finally got the feeding tube in the right spot yesterday evening, so hopefully he'll be able to keep most of his feedings down and start growing. His little bottom is looking a little better. We're trying to keep it dry and have oxygen blowing on it. That's about all for now. Greg is up there this morning and I'm going this afternoon. More later. jc

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