Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, February 17, 2009

Tomorrow's the big day

Well, everyone is on board with the procedure to create the hole between Mav's right and left atrium. It will be happening tomorrow around 12:30. Mav had a pretty good day today. His vent is down to 22. His white count is still hovering around 19 which means he still has some infection brewing. He was awake quite awhile today and I held him for about three hours. He's so sweet. He got a new PICC line today, too. Ok, so tomorrow is a very big day for Maverick. This hole in his heart has to be the right size. Too small and not enough blood will shunt across, so it won't help. Too big and too much blood will shunt across and his oxygen saturations could be too low. This still isn't a sure fix, but it's the best option we have right now. If it works and corrects the PLE - hooray! Please keep him in your thoughts and prayers tomorrow. We need:
1. The hole to be just the right size
2. The pressures in the right heart and his central venous pressure to decrease after the hole is created.
3. His oxygen saturations to remain at an acceptable level
4. The infection to clear completely
5. The PLE to resolve

The PLE won't immediately resolve, but within a few weeks we should start to see some improvement (his albumin level, total protein, immunoglobulins and lymphocytes to rise). I'm praying this is Mav's big chance to make a turn-around. Thanks for your continued thoughts and prayers. Love you all - jc


Anonymous said...

We are hoping and praying for Maverick here in Dallas.
Lots of love,
Vanessa Blutrich and Heart N Hands

Laura-Marie said...

Maverick is in our thoughts and prayers.

Anonymous said...

I am praying for little Maverick right now that this procedure will be a huge success and that Maverick will gain strength and heal. I am praying for your sweet family to have strength and peace. Rachel Schooler

Anonymous said...

Julie - I'm Johnna that worked with Greg at the Home Health in Wewoka. I've keeping up with you and baby through this blog. Thanks for taking the time to keep us up to date. I will continue to PRAY every day and night for you all. My first born had gastroschisis and we spent 77 days and 2 surgeries at OKC Childrens. Even so, I can only begin to imagine your plight. GOD BLESS you and your family. Please know that we care about you all and will continue to pray.

Anonymous said...

Juli - I wanted to call you today to see how things went....but I knew you were preoccupied. Hope everything went just like the textbook and Maverick is doing good. You don't have to post this...anxiously waiting to see some news. Love you - Teresa