Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, February 24, 2009

Our precious Maverick went to heaven this morning. He has been such a fighter, but he is finally at peace and without pain. The bleeding continued and wasn't controlled with blood and platelets. We stayed the night last night and Greg and I both held him. I was able to crawl up in the crib and sleep snuggled up beside him. This morning his heart rate started to slow, so I rocked him and read him Brown Bear while his daddy was holding his hand. We told him how much we loved him and a few minutes later his heart beat wasn't detectable. I was holding his hand when the doctor took out his ventilator tube so we could see his beautiful face. He squeezed my finger and smiled before he took his last breaths. Thanks for your thoughts and prayers during this difficult time. I will post details of the arrangements later.


Anonymous said...

I am so sorry, my sweet friend. I am so thankful to read that you and Greg were able to be with him. Please know that all of your brothers & sisters in Christ will help carry this burden of pain and loss. We will not let you be crushed!
I love you - Kristi

Jamy said...

Greg and Juli,
I am so sorry you're having to walk through this bend in Mav's journey; it sure isn't what we wanted. I am glad that you got those sweet moments with are a very amazing family; all six of you.
Todd and I love you so much and want to do whatever we can to help.

Anonymous said...

I am so sorry for your loss. You have been so strong and Maverick was such a fighter. Thank you for sharing your story and let me know if there is anything I can do for you and your family. You are in my thoughts.
Vanessa Blutrich

Anonymous said...

My sister, jaime Reynolds , has been keeping me updated on your sweet boy. I just want you to know that I am thinking and praying for your family during these difficult times. I wish I could say what you need to hear. Just know that I am so sorry for your loss.

Anonymous said...

I love you guys and my thoughts and prayers are with you.
Lu Anne

stacyyates said...

Dearest Juli and Greg,
My prayers are with the both of you and your family at this time. You guys have been strong. Maverick is and always will be wonderful. We miss you dearly.
Stacy-MCCH PICU/transport

Anonymous said...

Dear Juli, Greg & Loved ones,

We are so sorry for your loss. Yes, Mav was a fighter and so were you all. Our hearts are breaking for you, but know he is being taken care of in heaven. Mav knew he was loved...and will continue to be loved. You all are in our thoughts and prayers.

Sherry & Tom Bargsley

Nicki said...


Our thoughts and prayers continue to be with you and your family. We are so sorry to hear of Maverick's death, but so thankful that his last breath sounds like it was incredibly peaceful with you and Greg holding him. Please let us know if you need anything...


Clarissa said...

Greg & Juli - I am so saddened to hear of your lost. I wish there were words of comfort I could say that would ease the pain and heart break that y'all are experiencing. If there is anything at all that I can do, please do not hesitate to contact me.

Karen said...

Juli and Greg,
I am so sorry. I have followed Maverick's move from Medical City ever since you gave me the site. My thoughts and prayers have been with you. I will continue my prayers for all of you during this difficult time. You are an awesome family.
Love in Christ,
MCDH Lactation Consultant

Anonymous said...

Words are not sufficient to express how sorry I am that God's plan for Maverick was to take him home. What a wonderful gift, though, to have those last moments with him. Even with all those tubes, tape and wires it was always very clear that Maverick loved his Momma and I'm so glad he was able to tell you that before he left. What a precious memory! You will see him again one day, Juli, and he will be healed and whole and he will STILL know his Momma! May God embrace you with His love, comfort, peace and many, many sweet memories! I will continue to pray for you and your family - much love, Gaynell