Holding our boy!

Ok, I tried to post another video and it didn't work. I let it run all night and it still didn't post. My phone isn't sending pics to the blog either for some reason - sorry. I held Maverick today! It took a bit of manuevering, but luckily my friend Michelle and my stepmom Teresa stopped by just in time to help, film, and take pictures. Thanks to Mav's nurse, Grant, for helping set the room up so holding him will be easier in the future. Mav wasn't sure about what was going on, but he eventually just fell asleep. He acted like he felt better today. He hasn't been able to wean from the vent any, yet, but hopefully soon. His white count and his crp went down today (32 and 124) and his blood cultures from yesterday are still negative. All that means the infection is responding to the antibiotics. We got more good news today, too. The second alpha1-antitrypsan level came back and it was normal. That means there was no protein loss in his stool, which means the heparin - or something - is working to manage the PLE. YEA! His poor little bottom is still bad, but I'm going to try something new tomorrow if it's not better.

More tomorrow. Thank you all for everything! Love you - jc