Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, February 3, 2009

Holding our boy!

Ok, I tried to post another video and it didn't work. I let it run all night and it still didn't post. My phone isn't sending pics to the blog either for some reason - sorry. I held Maverick today! It took a bit of manuevering, but luckily my friend Michelle and my stepmom Teresa stopped by just in time to help, film, and take pictures. Thanks to Mav's nurse, Grant, for helping set the room up so holding him will be easier in the future. Mav wasn't sure about what was going on, but he eventually just fell asleep. He acted like he felt better today. He hasn't been able to wean from the vent any, yet, but hopefully soon. His white count and his crp went down today (32 and 124) and his blood cultures from yesterday are still negative. All that means the infection is responding to the antibiotics. We got more good news today, too. The second alpha1-antitrypsan level came back and it was normal. That means there was no protein loss in his stool, which means the heparin - or something - is working to manage the PLE. YEA! His poor little bottom is still bad, but I'm going to try something new tomorrow if it's not better.

More tomorrow. Thank you all for everything! Love you - jc


Anonymous said...

Baby steps! I am very excited for you. We'll pray that he keeps moving in a good direction. Love you! lp

Anonymous said...

Yay! Celebrating with you...continuing to pray.
The Crawley Crew

Dejah Quinn said...

Juli! soo..glad to hear the good news. I am praying for him and the rest of ya every day...I am going to try and get over to see you soon.

Miss ya!