Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, February 4, 2009

A Good Day

Maverick had a good day today! His white count was down to 15 - no CRP drawn today. No vent changes. They're only doing labs once a day since he has no access to draw blood (that means he has to get stuck everytime he needs labs). They're doing daily blood cultures until they're negative. The one from the second is positive, but the number of bacteria has been decreasing. That's good news. I held him again today, and he did great. He just looks around and looks back at me like "What's going on?" Hopefully more of the same tomorrow, but with great blood gases - the labs and gas are drawn at 0400. His bottom is still bad, maybe it will be better tomorrow. I'm still having issues with my phone not sending pics, but I'll keep trying. More tomorrow - love you all - jc

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