Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, February 10, 2009

I forgot to mention on the earlier post that Mav has a new mattress to keep the poo off his bottom. His PT, Peggy, and I rigged a pillow so the poo has a place to go now and it doesn't even touch his skin. Maybe we'll patent it some day...


Aunt Pat said...

Good for you Julie! A better 'mouse trap'!!!!! Aunt Pat

Anonymous said...

I have been keeping updated on Maverick and your family. He is such an amazing little man. I really like your comment about statistics, it is definitely the truth. You are so smart and strong! I feel like I cannot say enough but we are thinking of you often.

Vanessa Blutrich (Dallas TGA mom)