Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, December 2, 2008

Another pic of Mav. It's his first time to somewhat sit up. He has a boppy under him. He did very well with it. He's had a pretty good day today. They've increased his feedings again and he's almost up to full feedings. They're still continuous through the yellow tube that goes to his intestines. Hopefully his IV nutrition will be turned off tomorrow. He's weaned a bit on his ventilator and they're planning on weaning some more tomorrow. His CRP was up a little today (from 0.2 to 1) - when it goes up it can indicate infection. It's still not high enough to be worrisome, but it bothers me that it's up at all. He hasn't had any urine in 48 hours :( There is still hope that his kidneys could kick in... just keep praying. The dialysis is going well, though, and his BUN is down to 49, creatinine is at 1.4.

Greg and the kids are doing well. I'm planning on going back to Shawnee on Thursday and Greg will come down here on Friday morning. More tomorrow - jc

4 comments:

Anonymous said...

Juli,
I love the little tuft of hair on the top of his head. Very cute. Hang in there.
Marcy

Anonymous said...

What an amazing, strong, precious boy. I just can't wait to see him face to face!

Wanted to let you know that we prayed for those little kidneys at the end of ladies Bible Study this morning, and we are continuing to pray with expectant hearts.

Our God is able! We love you all and think of you continually. May He surprise you with strength and encouragement as only He can.
Amber

Kim said...

Juli-
Mav looks so sweet sitting up in the pic. I loved getting to be with him last week. I look forward to seeing you too! You and Greg are doing an amazing job! The article in the Shawnee News Star was great. Thanks for keeping us all posted about Mr. Mav.
Love you-
Kim

Anonymous said...

hi juli,

i'm glad to see maverick looking so well. he's such a cutie! i hope you are doing better as he does better. you are all in my prayers for a wonderful, family christmas at home.
sincerely,
karlin