Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, December 17, 2008

Mav's last blood gas was better. His output from his chest tube is only about 2mls/hr (about 1/2tsp) - he had put out over 150mls since it was placed yesterday evening. His vent settings are still pretty high, but they're hoping that they'll be able to wean him some in the next day or so. They think the compression from the fluid in his chest caused his problems. They say his chest x-ray looks better and believe he is re-recruiting some of his alveoli (basically they think his lungs are working better). He'll get better, it just might take awhile. We're just going to see how the next few days go to see when he'll be able to transfer to OKC. We're hoping before Christmas, but I don't want him to go until he's ready. Thanks for all your thoughts and prayers. I'm so blessed to have you all. jc

1 comment:

BeX said...

I just came across your blog. My prayers go out to you! I hope Maverick's condition will improve very soon and you'll be able to have him come up to OKC to be closer to you! (I'm in your area and I would love to reach out and help if you need anything during this trying time.)

Best wishes and God bless....