Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, December 12, 2008


Mav is three months old today. The nurses had a little party for him and brought in a cake. He was pretty awake for quite awhile today. As you can see, he now has a shirt on. I put one on him yesterday and just started bawling. Poor Jenny and Sheila (the nurse and RT) had to put up with a crying momma yesterday. All I could think of was the fact that he was almost three months old and that was the first time I'd been able to dress him. I just wonder how much longer this will be.

He's down on his vent to a rate of 12 (40%, R12, PS 12, TV 25, Peep 5). Hopefully he'll be able to maintain that overnight. He's still off the formula. They're going to let his little bottom heal some more and then try a different formula in a few days.

Greg and I made a pretty big decision yesterday. We're going to have him transferred to Children's in Oklahoma City next week. It was a tough decision to make, but we all need to be together. Right now he's just mainly weaning from the vent and they're having to tinker with his dialysis and medications. Since his heart is ok now, we feel like it's a good time to have him transferred. The weaning process and getting him to the point where he can be discharged may be several weeks away or several months. One thing we have learned through all this is that Maverick sets his own schedule. We won't be home by Christmas (which makes me so sad), but at least we'll all be back in Oklahoma together.

We'll really miss the all the great people here. We have received the best possible care and it's a little hard to leave, but it's the right decision for us now.

Thanks for all your continued thoughts and prayers. We appreciate each one of you. Love you all - jc


Anonymous said...

Oh, my gosh, that boy is beautiful. He looks so handsome in that little shirt.

We will be praying that his transfer to OKC goes smoothly. It will be good for your family to be less fractured.

You guys are so strong, and your faith is amazing. May God's strength and peace continue to meet you at every point, and may little Mav's daily improvements be great cause for rejoicing :-)


Anonymous said...

Mav looks great and so alert! It is surely difficult to make the move but being closer to home and having your family together should relieve some of the stress. Praying continues.


Anonymous said...

Maverick and your family continue to be in our prayer. He is a very cute little guy. I can't wait to see the little man in person.