He's down on his vent to a rate of 12 (40%, R12, PS 12, TV 25, Peep 5). Hopefully he'll be able to maintain that overnight. He's still off the formula. They're going to let his little bottom heal some more and then try a different formula in a few days.
Greg and I made a pretty big decision yesterday. We're going to have him transferred to Children's in Oklahoma City next week. It was a tough decision to make, but we all need to be together. Right now he's just mainly weaning from the vent and they're having to tinker with his dialysis and medications. Since his heart is ok now, we feel like it's a good time to have him transferred. The weaning process and getting him to the point where he can be discharged may be several weeks away or several months. One thing we have learned through all this is that Maverick sets his own schedule. We won't be home by Christmas (which makes me so sad), but at least we'll all be back in Oklahoma together.
We'll really miss the all the great people here. We have received the best possible care and it's a little hard to leave, but it's the right decision for us now.
Thanks for all your continued thoughts and prayers. We appreciate each one of you. Love you all - jc
3 comments:
Oh, my gosh, that boy is beautiful. He looks so handsome in that little shirt.
We will be praying that his transfer to OKC goes smoothly. It will be good for your family to be less fractured.
You guys are so strong, and your faith is amazing. May God's strength and peace continue to meet you at every point, and may little Mav's daily improvements be great cause for rejoicing :-)
Love,
Amber
Mav looks great and so alert! It is surely difficult to make the move but being closer to home and having your family together should relieve some of the stress. Praying continues.
Sherry
Maverick and your family continue to be in our prayer. He is a very cute little guy. I can't wait to see the little man in person.
Tara
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