Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, December 19, 2008

FW:

Here's our sweet boy today. He's had a pretty good day and they're weaning his vent a little. Greg came back today and I'm going to TX tomorrow. If all goes well, we would like to transfer him to OKC the first part of the week. If it looks like he won't be going to Oklahoma, Greg and the kids will go to Texas on Sunday or Monday. We didn't even decide on this plan until late this afternoon. We truly have to just take things as they come. We're having some difficulties with the insurance approving this transport, but we can still have him transported before their approval and take things up with them later. It just seems like he'll do well for awhile and then something happens and he has a set-back. We would like to catch one of the good windows and take advantage of it. Hopefully he'll stick with the plan this weekend.

I've received many beautiful Christmas cards this past week. I have always loved sending Christmas cards and letters, but I'm taking a break this year. It just doesn't seem right to send one without having Mav home. So, don't take me off your lists - I'll be back at it next year. jc

1 comment:

Anonymous said...

Jill and I continue to pray for you and your family.