Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, December 1, 2008

Here's Mav today. He's been pretty bright-eyed and acts like he's feeling better. They've increased his feedings through the tube to 7mls/hour (that's about 1 1/2 tsp per hour), and have decreased his ventilator rate and pressure a little. He hasn't had any urine out today, but is tolerating two hour dialysis well. They're not trying to get any extra fluid off, just trying to keep him about even. He's getting physical therapy every day now - just working on stretching his little arms and legs - they're still really stiff from all the swelling and from the time he was paralyzed. He's been watching his mobile some today and resting well. The nephrologist said he thinks the cloudy peritoneal fluid (the fluid coming out when they do the dialysis) is due to lymphatic fluid. So far the cultures show no growth (that means no infection). So, that's encouraging. It is just concerning that his kidneys aren't really kicking in and the nephrologist mentioned if they don't, Mav would have to go home on dialysis - probably just at night. That's do-able, but to all our prayer warriors out there - pray that his kidneys will start working like they should. More tomorrow - love you all - jc


Anonymous said...

It is so sweet to see the pictures of the kids - they are all so darling! Mav is blessed to have such a wonderful family.

I will focus my prayers on his kidneys and your endurance.

I love you, friend. Kristi

Anonymous said...

Girl, hang in there! Prayers continue daily. The sweetest prayers for Maverick come from little mouths - it is so sweet to hear. They are so earnest, simple and matter of fact. We love you & miss you bunches! lp