Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, December 16, 2008

Just got a call from Greg and the most recent gas is much better. We were hoping to transfer Mav to OKC tomorrow, but due to the recent problems and the weather it looks like we'll wait and just play it day by day. It's just so frustrating that one day he's doing great and the next he's not. I've tried to tell myself to step back and not get so concerned over a few bad results or setbacks, but I think it's impossible not to. It looks like the kids and I may be going to Dallas this weekend. We'll see how things go tomorrow.

Carter had his Christmas program at school today. It was very cute. Chloe, Maddie and I enjoyed it. Chloe talked about it the whole way home and all evening. I've been trying to be "present" with the kids and enjoy them while I'm here (it's hard when Mav is acting up, though). This evening we made some white chocolate pretzel sticks and Christmas cookies. They had fun. For some reason I haven't been able to send pics to the blog from my phone, but I'll try to post one of them tomorrow and I'll have Greg send one of Mav. More tomorrow - jc
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