Here's little Maverick this evening sleeping with his monkey. I was getting ready to leave tonight and I rubbed his head and played his music and he went right to sleep. His CRP is down to 8 today - much better. He's back on feedings - 1/2 strength portagen at 10mls/hr. They're trying 1/2 strength since the full strength gave him diarrhea. His dialysis is still going well. He's still just peeing a little with every or every other diaper change. They weaned his tidal volume on his vent today to 25 (from 30). He looks good, and he stayed awake a lot today. The docs have decided to try him on epogen (it's a medicine that helps with red blood cell production). I guess that will start tomorrow. No other big changes. He's having therapy twice a day, every day. That should help loosen him up a little. His little arms and legs are so tight.
Greg is feeling better. He went to see Mav this morning and then I went this evening. I think that's the plan for this next week. Love you all - jc
1 comment:
I am so happy for you, friend! What a wonderful Christmas for your family. He looks great - he must be happy to be back in OK.
I will pray for him to continue to heal and gain strength. That he will be reunited with you at home soon. That you would have the endurance to manage a split household.
I am so proud of you and am encouraged by your deepened walk with God. You are precious.
I love you - Kristi
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