Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, December 26, 2008

mav

Maverick had a good day today. His CRP was down in the 40's and his white count was down to 13 as well. This means he's responding well to the antibiotics. They isolated stenotrophomonas in his blood and he is on the antibiotics he needs (they have him on bactrim and miropenum). His heart echo today showed no growth on his tricuspid valve (yea!). Hopefully he'll just need one to two weeks of antibiotics to get this taken care of. He met his great-grandparents and aunt Cindy today and his great-grandmother yesterday. I don't remember who, but someone commented on how small he is and said he looks bigger on the blog. So, I took this pic with my hand just for reference. He's still pretty small. Weaning from the vent is off until this infection is a little better. More tomorrow - jc

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2 comments:

Unknown said...

Juli,

You are such a wonderfully attentive Mom. I really enjoyed watching you with Maverick. Your days are so full at the crib-side of that little guy - with diaper changes, positioning, baby massage, and moving little limbs through their range of motion. I had often wondered how the long hours in a hospital room would be spent.

He's such a precious little guy. At one moment he seems so tiny and fragile. Then the next moment I see Respiratory therapy come in with a glorified fly swatter vigorously tapping at his chest. It's then that I see how tough that little guy is. He just opened his eyes and seemed entertained to see that flying suction cup on a stick swinging past his face!!

Take care,
Meredith

December 27, 2008 at 8:41 AM
Anonymous said...

He may be tiny, but he is so alert! Would love to come by and see you sometime this coming week. Please let us know if one day is better than another. The boys at our house think his mohawk rocks.
Love and Prayers,
Amber & Crew

December 27, 2008 at 9:52 AM

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