Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, December 10, 2008

Mav is getting a little better. He's back on full feedings - they've changed his feedings from breast milk to portagen (which has given him diarrhea again and his little bottom is red and raw again) and they've slowly started weaning on his ventilator again. They're not actually sure if it is endocarditis or not. All his blood cultures have been negative so far - usually they would be positive with that type of infection. The doctors say they wouldn't have expected such a quick turn-around if it was actually endocarditis. The area in question in his heart was smaller yesterday - they say it could be a clot caused from one of the lines (central IVs) he has. They're going to treat him with all the strong antibiotics for 7-10 days and then re-evaluate everything. One good thing - he's peed several times over the last two days after no urine output for over a week. It's not nearly a normal amount, but it's better than nothing.

Greg flew back home today to be with the kids. We're coming down here to spend the holiday break. We're going to try to make this Christmas as good a possible for the kids. They have been such troopers through all this, but their patience is wearing thin. It's just been such a long journey and we're so ready to take him home. Love you all - jc

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