Mav is getting a little better. He's back on full feedings - they've changed his feedings from breast milk to portagen (which has given him diarrhea again and his little bottom is red and raw again) and they've slowly started weaning on his ventilator again. They're not actually sure if it is endocarditis or not. All his blood cultures have been negative so far - usually they would be positive with that type of infection. The doctors say they wouldn't have expected such a quick turn-around if it was actually endocarditis. The area in question in his heart was smaller yesterday - they say it could be a clot caused from one of the lines (central IVs) he has. They're going to treat him with all the strong antibiotics for 7-10 days and then re-evaluate everything. One good thing - he's peed several times over the last two days after no urine output for over a week. It's not nearly a normal amount, but it's better than nothing.
Greg flew back home today to be with the kids. We're coming down here to spend the holiday break. We're going to try to make this Christmas as good a possible for the kids. They have been such troopers through all this, but their patience is wearing thin. It's just been such a long journey and we're so ready to take him home. Love you all - jc
Blindsided
11 years ago
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