Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, December 22, 2008

Where am I?

We made it! We left Dallas a little later than I anticipated, but nevertheless, we are all in Oklahoma tonight. Mav did great on the flight. I'm sure it was due to the excellent care from Mike and Kim, and from the superior flying skills of our expert pilot, Max. Thank you all so much for coming to get Mav. When we arrived in the PICU his eyes got wide and he looked at the people around him like, "Who are you and where am I?" He is transitioning quite well. I was a little concerned about my sensitive boy and the big change, but he's handling it like a champ. He was even able to wean on his vent after arriving (TV to 30 from 42). Everyone in the PICU here has been great and it's been nice to see so many friends and familiar faces. We were met on the helipad and escorted to the PICU with an entourage of our Mediflight people. Mav has a little fan club going here. Once he was settled, I was cleaning his mouth and I'm almost positive he smiled. I tried to get him to do it again, but couldn't. I'm going to keep trying. Maybe I'll get it on camera next time so I'll have proof.

I'm sure the next few days will be busy. Maddie, Carter and Chloe haven't seen their little brother since Thanksgiving, and there are grandparents, great-grandparents, aunts and uncles that still haven't seen our little guy. We got a great Christmas present this year - Mav is doing well and we are all closer together. God is good. Thanks to you all for your thoughts and prayers - jc


Anonymous said...

Oh, Juli, he looks amazing! We are praising God with you for the smooth transition. We are praying that your Christmas will be filled with His good gifts. Please let us know if you need anything at all. It's great to have you closer to home.
Amber and Crew

Kim said...

Yeah! The little guy is doing well on Oklahoma.(God's country!) I am so happy things went so well today! I love you sweet friend and am so glad your family is much closer together! We are heading to Shawnee tomorrow and will try to connect with you!

Lindsay said...

I'm so glad that Mav made it to OK and is settled in. Yay for the vent weaning already! I'm sure he will get great care in the PICU there. We miss you guys already!

cindy said...

Thank God, I am so happy your family is together. I will be praying for Mav
Love you guys
Cindy (CVPICU)

Anonymous said...

Juli, he looks cuter and cuter everyday. I am so excited that he made the trip well and has weaned more from the vent. That is a very big step. Please let us know if there is anything we can do for you all. You and your family are all in our prayers. I hope and pray and you and yours have a blessed christmas and new year!!
Jodi, Steve and Elisabeth

Anonymous said...

Praise God for the smooth move to Oklahoma. We pray that Mav continues to get better each day.
The Kidneys

Anonymous said...

Such great news! I'm so glad you are closer to home now and will be surrounded with friends and family. It sounds like Mav was loves to be in boomer sooner land! Will continue prayer!

Dianna said...

Hallelujah!!! Oh what a blessing Mav is! I am so grateful for this answered prayer...Just enjoy each other...You all are AMaZING! and God is So good at giving's like Christmas
love and Merry Christmas..
Dianna Black
fan club no: 08174367b82

Anonymous said...

I am so glad Maverick's trip went smoothly. Good luck to all of you!!!!! We miss you here but are thankful all of you can be so much closer to home....Tim RT