Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, December 6, 2008

Here's a pic of the kids today at breakfast with Santa. They had a good time. Chloe kept trying to sneak back up to Santa while other kids were getting their pictures taken. It was nice to see my friends and everyone back in Shawnee, but it seems so odd to be doing something fun while Mav is in the hospital. I'm trying to be "normal" for the kids, but I'm back in that mode where I can't concentrate on anything. I just keep thinking about him. Maddie was insistent on putting up some decorations outside today, so she did. She did a very good job. She lined the walkway and two trees with lights and put our inflatable Santa up in the yard.

Mav had some big moves today. He was moved to a crib from the warmer. Greg says it looks much more comfortable. Mav also got to sit up in a bouncy seat for awhile today. Greg said he loved the toys on it. He took the toy bar off one time and Mav started to cry (you can't hear him cry because of the ventilator, but you can see him do it) so he put it back on and he stopped and just looked at it. They tried to change his dialysis to two hour dwell times, but he didn't like that too well and they had to go up on the vent a little. Just day by day. More tomorrow - jc

1 comment:

Dianna said...

The picture is awesome of the kids..I am glad you were here for awhile...we love you and are lifting all of you up in our prayers.