Here's a pic of the kids today at breakfast with Santa. They had a good time. Chloe kept trying to sneak back up to Santa while other kids were getting their pictures taken. It was nice to see my friends and everyone back in Shawnee, but it seems so odd to be doing something fun while Mav is in the hospital. I'm trying to be "normal" for the kids, but I'm back in that mode where I can't concentrate on anything. I just keep thinking about him. Maddie was insistent on putting up some decorations outside today, so she did. She did a very good job. She lined the walkway and two trees with lights and put our inflatable Santa up in the yard.
Mav had some big moves today. He was moved to a crib from the warmer. Greg says it looks much more comfortable. Mav also got to sit up in a bouncy seat for awhile today. Greg said he loved the toys on it. He took the toy bar off one time and Mav started to cry (you can't hear him cry because of the ventilator, but you can see him do it) so he put it back on and he stopped and just looked at it. They tried to change his dialysis to two hour dwell times, but he didn't like that too well and they had to go up on the vent a little. Just day by day. More tomorrow - jc
1 comment:
The picture is awesome of the kids..I am glad you were here for awhile...we love you and are lifting all of you up in our prayers.
Dianna
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