This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.
This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.
This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.
Wednesday, December 17, 2008
Mav isn't doing well today. They've had to go up even more on his ventilator. His chest tube output has slowed down, though. I don't know what's going on with him, but all I can do is wait and pray.
3 comments:
Anonymous
said...
I'm thinking of you and your family. Yall are not far from my thoughts and heart. Love, Lu Anne
I am a mother to Maddie, Carter, Chloe, and of course Maverick - who is now in heaven. I am wife to Greg. I am an RN and worked for Mediflight of Oklahoma transporting critically ill neonates throughout the state prior to Mav's birth. I am currently taking some time off to enjoy my kids before I start nurse practitioner school in the fall.
3 comments:
I'm thinking of you and your family. Yall are not far from my thoughts and heart.
Love,
Lu Anne
Praying for Mav's quick recovery and for your family as well. Hang in there.
Sherry
Continuing to pray. Love you all.
Amber & Crew
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