Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, December 8, 2008

They were able to stabilize litte Mav pretty quickly last night. He has responded well to the treatment and has weaned off the nor-epi. He's just on a small amount of epi. They've restarted his feedings at a lower amount. They think he has endocarditis - an infection in his heart. They could see "vegetation" on his tricuspid valve. That means they see a clump of something on the valve separating the upper and lower chambers of the right side of his heart - probably some kind of bacteria or fungus. They have sent blood cultures to figure out exactly what they're dealing with. They will repeat a heart echo tomorrow and see how it looks. Dr. M came in and spoke with Greg last night and said that this is treatable - it just takes 4-6 weeks of antibiotics. If he regains his strength and is able to wean off the ventilator before then he can go home on antibiotics. They had to go back up on his ventilator during all this. The nephrologist came in today and said maybe this infection is what has been keeping him from mobilizing the fluid (the swelling in his arms and legs). He has been putting a lot out of his dialysis catheter today and they've had to slow down on that. He's back on two hour dwell times for now. He's still a sick little boy, but we're encouraged he's responded so well and so quickly. For my medical friends, his CRP and wbc went down today - yea! Thanks for your thoughts and prayers - love you all - jc

3 comments:

Anonymous said...

Still praying for Little Mav. It was great to see you and the kids on Saturday.
Love,
Lu

Brenda said...

So good to hear he's responding quickly to treatment. Definitely an answer to prayers that went out from all over.
Hang in there!

David said...

Hi Juli & Greg,
So glad to hear that Maverick has stabilized. Thanks for keeping us updated.
Love,
Meredith