Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, February 8, 2009

Wide-eyed

Here's Mav today. No labs other than an Istat this morning (a blood gas with some chemistry). His blood gas was a little better than the day before, so they weaned his rate to 24. I'm hoping tomorrow's is even better. As of now, the plan for tomorrow is to go to radiology to get the transpyloric tube placed in the right spot. There is a new attending tomorrow, so he may decide to try to place it in the unit - I'm not sure. Greg was with him today and I was up there this evening. I held the little guy again. He's so sweet.

Guess what this week is? It's Congenital Heart Defect Awareness Week. I'll try to post some facts about it tomorrow. jc

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1 comment:

Anonymous said...

this picture is why we have such hope. He is such a beautiful boy with a non-verbal talk that is unbelievable with his eyes. Daddy loves you.

February 10, 2009 at 6:10 PM

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