Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, October 21, 2008

Another pleurodesis

He's still having alot of output from his right chest tube. The tube was blocked for quite awhile yesterday and gave us false hope that the drainage was ceasing. Dr. M wanted to do the pleurodesis again today. He's about out of options for correcting this output. He's gone up on his epi drip and has required a few fluid boluses, but his reaction this time doesn't seem so severe. He's pretty edematous, though. If you are a praying person, please pray that this will work. He's been through so much. I'm just ready for him to get better... They're placing the doxycycline right now. jc


Anonymous said...

It was nice to see you last Friday and I am happy for you that you were able to spend some time with the kids. We are praying that this procedure will work for Maverick so that you can all be home together.

cindy said...

I am thinking of you all and praying out loud. Love, Cindy

Marla said...

Juli, I just wanted to let you know that the kids and I are praying for baby Mav every morning before school and evening before bed. (and several times throughout the day) We want him to be able to come home soon and get to know his cool big sisters and cool big brother! Love, Marla and family

Anonymous said...

We are praying specifically, right now. God is able!
As always, may His presence be unmistakably with you.
The Crawleys

Anonymous said...

Our prayers continue to flow for "
The Mav" and your family. The kids have watched the video and say he looks "so sweet". If you ever need anything call me. We will continue to pray everyday for all of ya'll to be home sooon. Tara