Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, October 4, 2008

Chutes and Ladders

It seems as if every time we move two rungs up the ladder we slide back down three. His chest tube output was climbing and today it turned cloudy indicating once again he's not tolerating his feedings (they were still going down the tube from his nose to his stomach). Since he was already on the best formula for this problem they had to stop his feedings altogether. So, he's back on TPN and lipids (IV nutrition). They're going to give him a few days rest, then try again. If it doesn't work next time, they're talking about a procedure or another surgery. We'll just hope and pray this resolves on its own. We didn't get to hold him today - maybe tomorrow or Monday. The kids did come down, though, and we're going to the fair tomorrow. I've really loved seeing them. I didn't have time to download pics on mom's laptop today - I'll try before she leaves tomorrow. jc

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