Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, October 9, 2008

A rough night

Mav started having some blood pressure and perfusion issues last night. They had to start him back on milrinone and epi. They started dopamine last night as well. He's having an inflammatory response to the procedures they did yesterday, which means his little capillaries are leaking and he's retaining fluid again. He's still on the ventilator and is on a fentanyl drip for pain. Poor little guy. It's just heartbreaking to see him going through all this again. The doctors are hopeful things will start to turn around tomorrow. One thing about Mav is that everything seems to be on his schedule and not the doctors or mine. They've restarted some strong antibiotics just in case he's getting an infection, but his labs are good and they don't think that's the problem. His chest tube output has decreased quite a bit, which means the procedures they performed yesterday seem to be working. Say some prayers for little Mav - I know you all are. I'll update tomorrow. jc


Cindi Draper said...

Hey Julie. I am so sorry this has been such a rough road. It is so frustrating when things take longer and don't go the way you planned. When you do make it home (and you will, even though it doesn't feel like it now) you will look back on this amazing time and see all the wonderous things that God has done through this, and before you know it, Mav will be celebrating his first birthday and you will sending his pictures to all his nurses and bragging about what a wonderful little boy you have. I am praying for strength and rest for you and that Mav will start a rapid healing so you can be together as a family in your own home soon.
Praying for you all,
Cindi Draper

Anonymous said...

Greg and Juli-
My love to you both. And little Maverick too. I wish I could be there to hold your hands and hug you both. I know this is a hard journey for all of you. I ask God's keeping, his healing, and his love to cover ALL of you right now. Rest in him tonight and His love for Maverick. I ask that his mercy and grace would continue to wrap around you like a warm hug. May his angels sing over Mav as he is resting. I love you.

Anonymous said...

Hey Guys,
Just sitting here with Dad, Ryan, Aaron,and I (Heather). We all are thinking about you all. Just wanted to say that we love you and hope that you guys have a better night tonight.
Love you

Anonymous said...

I'm so sorry that little guy is giving you so many problems. Bless his heart. Maybe I need to come back and have a talk with him. Anyway, thank goodness he will probably never remember any of this. You are always in my prayers. XOXO Love ya, Michelle

cindy said...

Hope things are going better today. I know you're frustrated but keep your eye on the end result. This time spent will be a blessing in your life. My thoughts and love are with you all.


Anonymous said...

Please know that we are continuing to lift all of you up. May His perfect peace and comfort hold you up. May His presence be so strong that you can taste it. May His healing hand work with great haste.
The Crawleys